Chronic Disease
Help us Grow
- Unite for Safe Medications - Patient advocate, founder of Unite for Safe Medications (@BoesingLoretta)
- Patients Like Me - largest personalized health network (@patientslikeme)
- Solutions for Kids in Pain - Mission to improve children's pain management (@KidsInPain)
- (C) Patient Critical Co-op - member owned HC education & advocacy (@PatientCritical)
Mental Health
- Akathisis Alliance for Education and Research - working to end medicine-induced suicide and violence (@akathisiaalli)
- Benzo Buddies - support group for those trying to taper off benzodiazepenes
- Benzodiazeprene Information Coalition - Educating about the potential adverse effects of benzodiazeprenes taken as directed
- Inner Compass - building a future beyond mental illness through community (@_innercompass) MANY RESOURCES HERE
- Mad in America - Rethinking Psychiatry in the US (@mad_in_america)
- Mad in the UK - Rethinking mental health in the UK (@MITUKteam)
- MISSD Foundation - nonprofit working to reduce avoidable deaths by increasing awareness of akathisia & other adverse drug effects (@MISSDFoundation)
- National Organization for Tardive Dyskinesia - dedicated to those afflicted by tardive movement disorders (@NationalTardive)
- Stephen's Voice - Suicide Prevention - (@VoiceStephen)
- Surviving Antidepressants - support group for those trying to taper off antidepressants
Advocacy
- Citizen Health - rebuilding health care to give power back to patients and physicians (@CitizenHealthio)
- Free to Care - national coalition of over 2 million patients and doctors to make healthcare affordable and accessible (@Free2CareHC)
- Kids Right to Know - One Planet for all, all for One Planet (@RachelsNews)
- Patients Rising Now - formed to stand up for patients, to advocate for rights to treatments they need ...(@patientsrisenow)
- Essure Problems - (@EssureProblems)
- MoMMA's Voices - Maternal Mortality and Morbidity Advocates Coalition
- Radical Remission Project - dedicated to continuing research and creating community for survivors, patients, guests and health
- Reversive Medicine - FPB (Whole Food Plant Based)
- Society for Participatory Medicine - A non-profit devoted to helping patients and healthcare professionals work together as partners as e-patients and empowered physicians (@S4PM)
- United Patients Group - resource and trusted leader in medical cannabis (@upatientsgroup)
- We Nurses - connecting nurses to share information, ideas, knowledge, and support to improve patient care (@WeNurses)
- Hu-manity.ca - company behind the 31st human right, making your data your property (@hu_manityco)
- IMAGINE Citizens - Alberta citizens joining forces together to improve health care system (@imaginecitizens)
- Open Privacy Research Society - building tools and systems that enable consent (@OpenPriv)
- Patient Privacy Rights - mission to help individuals realize their right to privacy (@PatientPrivacy)
- Patient Safety / Patient's Rights - @pttopt
- Patient's Voices - @WhistleHealth
- Sicksplaining podcast - focused on chronic and invisible illnesses (@Sicksplaining, hosted by @Sabrina_Poirier)