Meet the Groups

Coming Together to Take Back Health Care

Health care is in the middle of change, especially as it relates to chronic disease. We are leaving the "Old Story"*. We will neither medicate nor insure ourselves to good health. We are moving toward the "New Story"*, where the focus is on health and care, prevention and healing. Right now, we are in "The Space Between Stories"*. We're in the middle of a (peaceful) revolution, where people and doctors are taking back health and health care. Many people and groups are creating new stories, one day at a time.

They are recognizing the issues with population health (too many sick people) and health care systems (unsustainable) and doing something about it. To date, these have been "small fish" efforts, often minimized by the efforts of "bigger fish". We don't need to be bigger fish, we just need to get organized. Each "little fish" needs to be the best fish it can be, yet together, focused on common goals, objectives, and directions, the efforts of the bigger fish can be mitigated.

* From Charles Eisenstein's book "The More Beautiful World Our Hearts Know is Possible"

Meet the Fish

Community Groups - (C) = Canadian, (UK) = UK

  • ACLM (American College of Lifestyle Medicine) - (@ACLifeMed)
  • True Health Initiative - a global consensus of lifestyle as medicine (@TrueHealthINIT)
  • Heal Health Care Now - grassroots movement to put the care back in health care
  • (C) Kids Right to Know - One Planet for all, all for One Planet (@RachelsNews)
  • Q Community - (UK) a connected community working together to improve health and care quality across the UK (@theQCommunity)
  • (NZ) Hearts in Healthcare - movement for human-centred health care, spreading the word about compassion in health care (@HEARTSinHEALTH)
  • Citizen Health - rebuilding health care to give power back to patients and physicians (@CitizenHealthio)
  • Get My Health Data - supporting liberation of healthcare data for benefit of consumers and system (@GetMyHealthData)
  • Cover Us Health - making healthcare more affordable for all (@CoverUSHealth)
  • Better Path - capturing and refining dark health data to ensure wisdom in medicine (@BetterPath)
  • #PinkSocks - A community united in changing the world from the ground up
  • Tincture Health - open source thoughtware for health, medicine, and beyond (@TinctureHealth)

Physician Groups

  • HPEC - building blockchain digital physicians guild (@HPECDAO)
  • Physicians for Patients - Patients should know their doctor and choose best doctor for them (@PhysForPatients)
  • PPA (Practicing Physicians of America) - grassroots effort to restore integrity and freedom to the practice of medicine (@PPA_USA)
  • Physicians Rise - physicians reclaiming responsibility for patient-physician relationship (@physiciansrise)
  • AAPS (Association of American Physicians and Surgeons) - voice for private physicians, all for the patient (@AAPSonline)
  • Doctor Patient Medical Association - doctors and patients working together for freedom in medicine (@docsandpatients)
  • Doctor Patient Rights - non-profit coalition of doctors, patients, caregivers and advocates fighting to improve the practice of medicine (@DrPatientRights)
  • DPC Alliance - helping spread Direct Primary Care to every corner of the galaxy (@dpcalliance)
  • Independent Physicians for Patient Independence - (@IP4PI)
  • Physician to Physician -- a physician group to address physician burnout
  • Association of Independent Doctors - national trade association to further interests of independent doctors (@IndDrs)

Patient Groups (C) = Canadian, (UK) = UK

  • my Healthy Community - You are here
  • Patients Rising Now - formed to stand up for patients, to advocate for rights to treatments they need ...(@patientsrisenow)
  • Radical Remission Project - dedicated to continuing research and creating community for survivors, patients, guests and health
  • Society for Participatory Medicine - A non-profit devoted to helping patients and healthcare professionals work together as partners as e-patients and empowered physicians (@S4PM)
  • Unite for Safe Medications - Patient advocate, founder of Unite for Safe Medications (@BoesingLoretta)
  • Hu-manity.ca - company behind the 31st human right, making your data your property (@hu_manityco)
  • Sicksplaining podcast - focused on chronic ans invisible illnesses (@Sicksplaining, hosted by @Sabrina_Poirier)
  • Patient Privacy Rights - mission to help individuals realize their right to privacy (@PatientPrivacy)
  • Open Privacy Research Society - building tools and systems that enable consent (@OpenPriv)
  • Patients Like Me - largest personalized health network (@patientslikeme)
  • Solutions for Kids in Pain - Mission to improve children's pain management (@KidsInPain)
  • (C) Patient Critical Co-op - member owned HC education & advocacy (@PatientCritical)
  • (C) IMAGINE Citizens - Alberta citizens joining forces together to improve health care system (@imaginecitizens)
  • United Patients Group - resource and trusted leader in medical cannabis (@upatientsgroup)

Individuals (C) = Canadian, (UK) = UK

  • (C) Ken Jaques - creating healthy communities (@kenjaques)
  • Joe Callender - bringing systems thinking mindset toward dysfunctional social systems (@JECallender)
  • The Roctor, MD - primary care doctor, reluctant leader, full of wit and wisdom (@TheRoctor_MD)
  • CancerGeek - health care ruckus maker (@cancergeek)
  • Brennen Hodge - Just a guy trying to reinvent health care (@BrennenHodge)
  • Caren Gallagher - loving life and working toward a healthier America (@GallaherCaren)
  • Leah Houston - EM Doc, leader to bring patients and physicians together (@LeahHoustonMD)
  • John Chamberlain - Chairman, Citizen Health and recovering Hospital CEO (@misterchambo)
  • (C) Dugald Seely - Founder and Director, Ottawa Integrative Cancer Centre (@dugaldseely)
  • Gabe Charbonneau - Practicing family physician and co-founder at Fluent (@gabrieldane)
  • Zeke McKinney - #OccEnvMed and #publichealth doc (@ZekeMD)
  • Kristie Leong - Physician, medical writer, health nut (@DrKristieLeong)
  • Clyde - Patient advocate (@clydesconnect)
  • Mario Amaro - CEO at @medeasetech (@MarioATX_MD)
  • Dana Corriel - Founder @SoMeDocs (@DrCorriel)
  • (C) Jana Buhlmann - Patient, caregiver, assisted death advocate (@baldgrrl)
  • Ellen McKnight - Activated physician, defender of the profession (@McKnightmdEllen)
  • Basia Jenkins - Anesthesiologist, physician (@docbasia)
  • Mommy Doc - Solo pediatrician, covering politics of healthcare (@silverdalepeds)
  • Christina Dewey - Passionate pediatrician and RA warrior (@PedsMamaDoc)
  • Dutch Rojas - making healthcare free at point of access for employers (@DutchRojas)
  • Doctor Yared - Proud Hispanic internal medicine physician (@dryared)
  • Cristobal Alvarado - Thoracic surgeon, lung cancer patient advocate (@CrisAlvaradoMD)
  • Susty Vegan - (@yuccanaturals)
  • Marion Mass - Co-founder, Practicing Physicians of America (@mass_marion)
  • Westby Fisher - Director, Electrophysiology (@doctorwes)
  • Nikki Johnson - Pediatric sedation physician, Physicians for Patients (@notaproviderMD2)
  • Amanda Dykeman - VP of ASHES Nonprofit, Advocate for safety of all medical devices (@manda1219)
  • Dan Houdeshell - advocate for T1 awareness, education, change (@DanHowdy1965)
  • Dawn Butterfield - Being the lone NO vote in a room full of yesses (@DButterfieldRPh)
  • Monique Whitney - Cheerer of the Underdog (@MoniqueWhitney)
  • Scott Newman - (@scottnewman76)
  • Heather Hammerstedt - Emergency medicine physician, Lifestyle medicine and coaching (@HammerstedtMD, @Wholisthealth)
  • Beth Frates - Lifestyle Medicine specialist (@BethFratesMD)
  • J Danita - Primary care MD private practice, AFPS advocate to prevent suicides (@DrDanitaJ)
  • (C) Daniel Pepe - Family physician (@dpepe88)
  • (C) Virginia McIntyre - Canadian Osteoporosis Patient Network, @PeoplePain board (@Mcintyre14V)
  • Ann McIntosh - passionate about healthcare consumer education and empowerment (@AnnMcMD)
  • Kelly Irwin - working to @endtheinequity so mental health is never a barrier to cancer care (@KellyIrwin_MD)
  • Molly Rutherford - Bluegrass Family Wellness and Addiction Treatment (@UnbridledMD)
  • Hugo Campos - White House champion of change for Precision Medicine (HugoOC)
  • Deven McGraw - health data privacy and security devotee (@HealthPrivacy)
  • Deborah Peel - privacy warrior, control over health data (@dpeelmd)
  • Bruce Y Lee - cover health and healthcare at Forbes (@bruce_y_lee)
  • Andrew Hoppin - Healthtech mixologist, synthesizer @CoverUSHealth (@ahoppin)
  • Jan Oldenburg - focused on digital and participatory medicine (@janoldenburg)
  • Linda Bluestein - pain MD and patient/EDS expert (@BluesteinLinda)
  • Nick Adkins - co-creator of #PinkSocks (@nickisnpdx)
  • Andrew Richards - co-creator of #PinkSocks (@andrewintech)
  • (C) Christine Chambers - psychologist making a difference for @kidsinpain (@DrCChambers)
  • Kanter - (@PatientDocPower)
  • Charles Frohman - (@CFroh)
  • Adrian Gropper - patient centered health information evangelist (@agropper)
  • Robert Gergely - (@rgergelymd)
  • Karim Keshavjee - designing next generation EMR and health system (@kkeshavjee)
  • Anna Fuqua - patient advocate (@PainPtFightBack)
  • Serenity Della Porta - passionate about applying health psychology, biopsychosocial health, primary prevention, and individualization (@health_advising)
  • Patricia Aronin - saving medical profession and restoring the doctor (@NeurosurgeonMom)
  • Kim Bellard - Innovation, technology and healthcare (@kimbbellard)
  • Jordan Shlain - purveyor of subtleties in the science of medicine (@DrShlain)
  • Amy Fogelman - recovering primary care physician (@AmyFogelmanMD)
  • Craig Wax - holistic family physician emphasizing prevention and health (@drcraigwax)
  • Lelena Peacock - accidental advocate for people in chronic pain (@LelenaPeacock)
  • Marina Tsapliina - Reimagine Medicine, Patient Activist with #insulin4all (@MarinaTsapliina)
  • Mark Milligan - CEO/Founder @Anywhere_Health and @RevHumanPT (@MarkMilliganDPT)
  • Torie Sepah - founder of Physician to Physician -- a physician group to address physician burnout (@toriesepahmd)
  • Beth Dost - advocating for those who can't (@BethDost1)